Tag Archives: developmental disabilities

Jason Helgerson, NYS Medicaid Director Meets NYC Families on 6/12

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MEDICAID CHANGES IN STORE: WHAT WILL HAPPEN?

How Will the Dollars Be Allocated?

HEAR FROM THE PERSON WHO WILL DECIDE


JASON HELGERSON
New York State Medicaid Director 

MONDAY, JUNE 12th
6 – 8pm
IAC
150 West 30th Street, 15th Floor

Here are some of our questions:

How will changes to the Medicaid dollars affect our families?
What are the plans for Managed Care for people with ID/DD?

 

SUBMIT YOUR QUESTIONS HERE: Questions@nycfair.org

 

These two articles lay out the situation

How Will Trump’s New Plan to Replace Obamacare Affect You? U.S Economics

Trump Budget Guts Medicaid, Disability Programs Disability Scoop

REGISTER WITH NYC FAIR:

http://bit.ly/2qwUSoC

Be patient with the link

INDICATE YOUR LOCATION PREFERENCE
ON THE REGISTRATION FORM

  • VIDEO CONFERENCING WILL BE AVAILABLE AT THESE OTHER LOCATIONS FOR THE MEETING WITH JASON HELGERSON
    Staten Island: PCCS, 150 Granite Ave, SI, NY
  • Nassau County: FREE, 191Bethpage – Sweethollow Road, Old Bethpage, NY
  • Rockland County: The ARC of Rockland, 25 Hemlock Drive, Congers, NY
  • Ulster / Greene Counties: 471 Albany Ave., Kingston, NY
  • Suffolk: DDI, 99 Hollywood Drive, Smithtown NY.Call- In #: 646-780-0451, PIN: 314-512-500 #  

Translation Available if Requested Before June 1st

Light Supper

For Policy Wonks: Also on June 12th, from 10:30 – Noon:
Mr Helgerson will attend the Medicaid Advocates Meeting. It deals with more technical and large-scale policy issues. Agenda items include DSRIP and Self-Direction.
Here are detailed instructions to attend this meeting and the proposed agenda.

A MORE GENERAL DISCUSSION OF HOW MEDICAID MAY IMPACT PEOPLE WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIES WILL TAKE PLACE IN THE EVENING

Coming Next Week:

Information about pending legislation concerning: Changes in Justice Center Reporting, Changes in 17A Guardianship Rules, the FAIR ACT, AND the implications of the proposed federal budget to programs for IDD.

Heastie: All sides agree on more money for direct care workers: Politico – 3/15/17

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FROM: Politico, March 15, 2017

Heastie: All sides agree on more money for direct care workers

By Josefa Velasquez

03/15/2017 02:10 PM EDT

ALBANY — The Legislature and Gov. Andrew Cuomo appear to have reached an agreement to fund wage increase for direct care workers, Assembly Speaker Carl Heastie said Wednesday, but details are still elusive.

“Money for direct care workers, I think that’s something we all agree … that’s a perfect example where I think all sides agree on more money,” Heastie told reporters.

Direct care employers, those who work with the elderly and disabled, have been complaining that the increase in the minimum wage, while a positive for the state overall, means it will be harder to recruit and retain employees if they can earn as much working at a fast food restaurant.

The Assembly’s one-house budget proposal includes $45 million for direct care workers beginning in April, the start of the fiscal year.

While the Senate also supports $45 million for direct care workers, its one-house budget resolution calls for $11.25 million for the implementation of direct care workers’ salary increase beginning Jan. 1, 2018, the final quarter of the fiscal year.

A spokesman for the state’s budget division remained non-committal, despite Heastie’s remarks.

“Budget negotiations on this and hundreds of other issues continue,” said budget spokesman Morris Peters.

A spokesman for bFair2DirectCare — a coalition that includes nonprofits that serve the developmentally disabled — lauded the Legislature for committing to wage increases for direct care workers.

“We are hopeful that the final budget will include this funding to start providing direct care workers with a living wage,” said spokesman Steve Greenberg. “We hope it will start as soon as possible because the crisis is real and it’s upon us today and clearly lawmakers, Democrats and Republican, Senate and Assembly recognize this crisis that direct care agencies are facing and it requires immediate attention.”

To view online:
http://www.politico.com/states/new-york/albany/story/2017/03/heastie-all-sides-agree-on-more-money-for-direct-care-workers-110395

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Here’s What YOU Can Do NOW!

Action Alerts, Advocacy, Bronx, Brooklyn, Manhattan, Meeting Minutes & Handouts, Queens, Resources, Staten Island, , , ,

BE HEARD NOW:

OUR WORKFORCE MUST HAVE OUR SUPPORT

DOWNLOAD, CUSTOMIZE, MAIL, EMAIL THE 4 LETTERS BELOW TO GOVERNOR CUOMO AND YOUR NYS ASSEMBLYMEMBER AND NYS SENATOR
Letters can be edited 

Letters in Support of Direct Support Professional:

To Governor Coumo:
To NYS Assemblymembers and NYS Senate:

Letters in Support of 4410 and 853 Schools

To Governor Coumo
To NYS Legislators

Link to find your legislators:
NYS SENATE
NYS ASSEMBLYMEMBER


FORWARD THE LETTERS TO ALL YOUR RELATIVES, FRIENDS AND CO-WORKERS

This is the information about the “Workforce Crisis” that was distributed at the Nov. 2nd Meeting

Data Sheet from #bFair2DirectCare
Statics about 4410 & 853 Schools supplied by IAC
Spending Patterns OPWDD supplied by DDWANY
Residential Survey by New York Lawyers for Public Interest (NYLPI)

 

ACT NOW

GET READY FOR ACTION

NYC FAIR Executive Committee Comments on “Parents’ lawsuit blames state for shortage of group homes”

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IMPORTANT, EXCITING STATE-WIDE NEWS:
NYC FAIR Executive Committee Comments on the Buffalo Lawsuit

We have become aware of the recent filing of a lawsuit in Federal court in Buffalo to address the lack of residential options for people with Intellectual and Developmental Disabilities. As advocates, we support the people who have taken this action, and know that they have done so to ensure that their loved one’s health, safety, and quality of life is protected.

In February the New York State Office for People with Developmental Disabilities reported that there are more than more than 11,000 people statewide who need long term housing and will not be able to live independently due to their Developmental Disability. New York State reported that 46% of these people live with a family caregiver who is 60 years old or over; 61% of caregivers are experiencing health issues themselves; and 48% of those at home need assistance with almost all basic activities.

It appears that New York State’s housing strategy for people with Developmental
Disabilities is crisis management; the state responds when the caregiver dies, is unable to, or refuses to care for their loved one. As advocates, we recognize that moving their loved one is one of the most difficult decisions that a family can make, but one that all caregivers will face one day. The best outcomes for our loved ones occur when caregivers are healthy and able to plan for this this move, with the state providing adequate supports and services to meet their needs.

We recognize the substantial need that exists to identify long term housing options for a continuum of people with Intellectual and Developmental Disabilities. It is for that reason there must be a variety of options including intensive support for those with the most complex needs.

It is unfortunate that families are faced with such uncertainty, and we applaud this group of families and their courage in taking this action.

Read the story as reported by the Buffalo News on September 13, 2016:
http://www.buffalonews.com/city-region/federal-court/parents-lawsuit-blames-state-for-shortage-of-group-homes-20160913

More Information : Read the complaint-class-action and memo-of-law-in-support-of-class-certa class action if you want to see all the details.