Tag Archives: developmental disabilities

The Scoop on the Residential Wait List, Survey & More

BELOW IS THE EMAIL SEND ON AUGUST 20, 2015 BY NYC FAIR: (PDF FILES ARE AT THE END OF THIS ARTICLE)

Good Morning NYC FAIR,

Below is a good description of the “Residential Wait List” process and survey. It was extracted from a detailed email from OPWDD. The link to OPWDD’s information is: http://www.opwdd.ny.gov/opwdd_about/commissioners_page/rrl/home .

Remember if you are NOT contacted you CAN register and complete the survey by calling 1-844-679-3369. If you have any problems or concerns, contact Emilie Wright, Lead person on this project at Emile.wright@opwdd.ny.gov

Please share the information below about the Residential Request List (RRL) review and telephone survey with EVERYONE you know.

Attached at the end on this email are English and Spanish language versions of:

  • the letter to individuals/families describing the RRL review and telephone survey,
  • the Caregiver survey that is included with the letter (original format in Spanish, updated format in English)
  • the July letter to MSC agencies that serve people on the RRL
  • the May letter to all MSC agencies telling them about the Residential Request List review

We hope this information answers many questions.

NYC FAIR, INC
NYC Family Advocacy Information Resource

Description the Residential Review List process and survey: 
Per OPWDD

“OPWDD is conducting a statewide review of its Residential Request List (RRL), formerly called the NYS CARES registry. Beginning in August, OPWDD will be calling families of individuals currently on the Residential Request List, or in some instances the individual if he/she made the request to be on the list, to talk about the OPWDD services you are now getting and those services you may be interested in getting. Special attention will be paid to residential supports you and your family may need now or in the future.

The information we get from these calls will be used to update OPWDD’s Residential Request List (RRL), and to help plan for future residential services individuals and families needs. This information will be made available in a report to the legislature that will include the residential needs people reported to OPWDD and a plan to address these needs. In addition to the information we receive from you, OPWDD will also be gathering information from other sources to help gain a full picture of residential needs.

You can help by talking to the OPWDD Caller and by answering the questions frankly. This will help us complete this important project. If you have any questions about the Residential Request List phone calls, please contact e-mail Residentialrequestlist@opwdd.ny.gov . Thank you for your interest in helping OPWDD to better meet your needs.

Some things to know about the calls:

  1. Dates of CallsThe calls will begin in August and will continue through September.
  2. How You Will Know the Caller is from OPWDD:
    1. The OPWDD Caller will tell you his/her first name and will tell you that he/she is calling for OPWDD about the review of OPWDD’s Residential Request List. The telephone number that will appear on your telephone caller ID is 844-679-3369.
    2. The caller will ask you to tell him/her your relationship to the individual with developmental disabilities and the date of birth of the individual with developmental disabilities on the list to confirm that they are talking to the right person. 
  3. What We Will Not Ask: The OPWDD Caller will not ask you to give your Social Security number, Medicaid number, TABS number or any other identification numbers. The caller will not ask for any information about your income or benefits or your family’s income or benefits, or for any credit card information.
  4. What the OPWDD Caller Will Ask about the individual with developmental disabilities:
    1.  Where the person is living now,
    2.  Who he/she is living with,
    3.  Who is helping him/her,
    4.  How old the helper or caregiver is and if the helper or caregiver has any issues that make it difficult to do everything that the person needs,
    5. Whether you think the person with developmental disabilities is getting the right amount of OPWDD services to support him/her where he/she is living now, and
    6.  What services you think the person with developmental disabilities will need in the future.
  5. If you would rather call in to do the survey, you can do that by calling 1-844-679-3369, Monday through Friday between 8am and 4:30pm. This phone number will be answered beginning on August 10, 2015.
  6. Planning for Services: The information you provide will help us plan for residential services individuals and families need across New York State and will not change your individual service plan. Please continue to work with your service coordinator and the OPWDD Regional Office to plan for your specific needs.
  7. Your Participation is Voluntary: You are not required to talk to the OPWDD Caller and if you do not, you will not lose services. OPWDD is trying to determine what residential services are needed.

*the letter to individuals/families describing the RRL review and telephone survey:  RRL-Individual-Family-Info_Letter_FINAL_W_EW_SIGNATURE_073015 RRL-Individual-Family-Info_Letter_FINAL_W_EW_SIGNATURE_073015_SP

*the Caregiver survey that is included with the letter (original format in Spanish, updated format in English)Survey CAREGIVER Individual-Familiy-Letter 081115Survey_CAREGIVER_Individual-Familiy-Letter_073115_SP

*the July letter to MSC agencies that serve people on the RRL: RRL_MSC-Agency_UPDATE_LIST_Letter_AK_070315, RRL_MSC-Agency_UPDATE_LIST_Letter_AK_070215_SP

*the May letter to all MSC agencies telling them about the Residential Request List review: EM_COMMISSIONER_1st_LTR_TO_MSC_AGENCIES_070115, EM_COMMISSIONER_1st_LTR_TO_MSC_AGENCIES_070115_SP

 

Meet the People Advising OPWDD

Meet The Panel

PANEL VERSION 2.pages corrected

OPWDD has created a Transformation Panel
to suggest ways of implementing the Transformation Agreement

The following Members of the Panel have agreed to come and hear from family members their concerns with the Agenda:
Peter Pierri, Susan Constantino,  Arthur Webb, Stephen Freeman, Charles Archer, Seth Stein (tentative)  

Click here for an explanation from the Kick-Off meeting hosted by OPWDD

Meeting hosted by OPWDD
Tuesday, May 19th, 2015
6 to 8pm,
Inter-Agency Council
130 West 30th Street – 15th Floor
(Just east of 7th Ave.)

Spanish Translation Available
Lite Supper

RSVP BELOW

Staten Island DD Council Meeting : 4/17/15

Download PDF Flyer: SIDDC_MEETING_FLYER

Join us for Our April General Council Meeting
 
Adaptive Design Presentation by
Alex Truesdell, Executive Director and Founder
 
Learn how custom made adaptive equipment is changing the lives of individuals with disabilities in NYC
 http://www.adaptivedesign.org/
 
When:  April 17, 2015
 
Where: 930 Willowbrook Road, Building 41A
Staten Island, NY 10314
 
Time: 9:30 am – 11:30 am
 
By attending Council meetings it allows you the opportunity to network with self-advocates, parents, agency representatives, and committee co-chairs
 
Be Informed & Be Empowered!
 
For more information, please call the SIDDC Office, 718.983.5276 or email contactsiddc@siddc.org

Melissa Primiano-D’Accordo, Ph.D
Information & Outreach Coordinator
930 Willowbrook Road
Building 41A
Staten Island, NY 10314
contactfssac@aol.com
familysupportservicesadvisorycouncil.webs.com
siddc.org
(718) 983-5276

Self-Direction Community of Practice meeting with Kerry Delaney, Acting Comm., OPWDD

By Lynn Decker

On March 30th, about 30 NY Metro families met by video-conference with Acting Commissioner Kerry Delaney and Kate Marlay, Deputy Director. Division of Person-Centered Supports, and Kate Bishop, Director of Health and Community Support, Division of Person Centered Supports.  This gathering was organized through NY Metro SD Community of Practice and we thank Mary Somoza for securing the meeting.

The agenda included the reduction in compensation to Fiscal Intermediary agencies that took effect on October 1, 2014, along with a variety of other elements of that “re-invention” of Self-Direction.  OPWDD staff recognized that the FI Compensation is an issue demanding attention, but stated they will be unable to re-open it for consideration with CMS until there is a year of experience data to present, and that can’t occur until July 2015 at the earliest.  They reviewed several measures they are offering to FI agencies in the meantime to provide financial assistance in the interim, including the Balancing Incentives Program grants that were announced in February.

Also discussed were the reductions in the available Personal Resource Allocation for some participants under the new formula, and the restrictions on rates and licensure for certain clinical consultants to Self-Direction plans.  OPWDD staff sought details from families to assess the impact of the first of these and possible alternatives or solutions to the other.

Exclusion of Individually Directed Good and Services (IDGS) funding for settings that are ‘specialized’ rather than integrated, which many families stated were the only suitable programs for their family member at this time, was also discussed.  Non-traditional but disability-focused programs that offer enhanced supports for behavior or physical mods that make it possible to develop skills needed for success in integrated settings are desired by many families, but excluded from Self-Direction funding.  OPWDD staff were less receptive to these concerns, saying that such settings needed to be made integrated in order to qualify for IDGS funds.

And finally, the inadequacy of the housing subsidy formula for any market priced housing in areas well served by transit was raised, along with inadequate support to access existing affordable housing offerings that may be appropriate.  The role of housing discrimination when approaching a potential landlord with documentation of housing subsidy on the basis of disability was also raised.

The commissioner expressed broad general recognition of family concerns and promised a face-to-face meeting with this group in the future.

If you or your family member are eligible for OPWDD funded services and wish to pursue Self-Direction with Budget Authority, you may request to join the google group for this parent effort at https://groups.google.com/forum/#!forum/ny-metro-self-direction-community-of-practice

Lynn Decker

Executive Board Member, NYC FAIR
lynn_decker@me.com

ACTION ALERT!!! Make 2 Calls TODAY

ACTION ALERT!!! CALL YOUR LEGISLATORS AND LEGISLATIVE LEADERS TODAY!!!!!

(as issued by NYSARC & IAC)

Even though the state has a $6 billion surplus from the bank settlements and both Houses of the Legislature have identified an additional $300 million  in revenue, neither chamber has committed to investing additional monies in supports and services for people with developmental disabilities.

FAMILIES CANNOT BE CAREGIVERS FOREVER! 

We need every Legislator and the Legislative Leaders to understand that additional funding is critically needed to provide new day and residential supports and services to meet the needs those living at home, often with aging parents.

ACT NOW, ONE HOUSE BILLS WILL BE PRINTED EARLY NEXT WEEK

  • Distribute this alert to your staff, families, and groups!
  • As a constituent you are very important to your elected officials and you must tell them what is important to you NOW.

Everyone needs to please call their Senator and Assemblymember, and the Legislative Leaders—Senator Skelos and Assembly Speaker Heastie — and tell each of them that New York State must invest in supports and services for people with developmental disabilities.

This State Budget must invest an additional $30 million on top of the Governor’s budget request for half the year to fund an additional 3,500 day and residential opportunities for people with developmental disabilities who are living at home.

  • Senate switchboard – (518) 455 – 2800  (For Senators home page CLICK HERE)
  • Assembly switchboard (518) 455 – 4100 (For Assembly members home page CLICK HERE)

Thanks so much for calling!