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NEWS FROM OPWDD’s TRANSFORMATION PANEL RE OUR MEETING ON MAY 19TH

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NEWS FROM OPWDD’s TRANSFORMATION PANEL RE OUR MEETING ON MAY 19TH

“Yesterday I was at OPWDD for a meeting of the Transformation Panel. Although it was not on the formal agenda, the meeting opened with a discussion of NYC FAIR’s meeting last Tuesday evening. The members of the panel that had been in attendance (as well as Steve Kroll from NYSARC who had been on the phone ) spoke up empathetically about the issues they heard raised by families. After some discussion, Acting Commissioner Kerry decided she would like to hold several open family forums in several parts of the State this summer regarding the Transformation panel, so families will have direct input prior to the committee making any of its preliminary recommendations. If you recall the original plan was to have these forums in the Fall after the panel’s preliminary recommendations were published, so families could react to them. Instead she now wants the family input prior to the committee even creating its preliminary recommendations…. The details have yet to be worked out.. I just wanted you to know that the panel wholeheartedly endorsed her suggestion.. Pete”

Peter Pierri, Executive Director
IAC
InterAgency Council of Developmental Disabilities Agencies, Inc.

Meet the Transformation Panel 5/19/15

Meeting Minutes & Handouts, nyc fair

The May 19th “Meet the People Advising OPWDD” Was A Resounding Success!

110+ People attended, All Were Ready to Ask Questions & Listen too

We Made a Difference:

Read a Note from Peter Pierri

& Please READ THE FOLLOWING:

OPEN LETTER TO COMMISSIONER DELANEY AND THE TRANSFORMATION PANEL

SUMMARY OF MEETING

MINUTES OF THE MEETING IN DETAIL

QUESTIONS SUBMITTED TO THE COMMISSIONER AND THE PANEL

OPWDD TRANSFORMATION PANEL SCOPE OF REVIEW provided by Peter Pierri, Exec. Director, IAC

Advocacy, Events, nyc fair

OPWDD TRANSFORMATION PANEL

SCOPE OF REVIEW

SELF-DIRECTION

  • How can we ensure that self-direction is a viable and desired option for most people in our system?

EMPLOYMENT

  • What are the obstacles to greater numbers of individuals in our system achieving and retaining employment?

COMMUNITY INTEGRATED HOUSING

  • How can we afford more people the option to live in community based integrated housing?

MANAGED CARE

  • Will the current program design model for Managed Care work as intended to more holistically address individuals’ needs?
  • What improvements can be made?
  • How can the system fund Managed Care entities in initial and future years?

SYSTEM SUSTAINABILITY

  • How will our system anticipate service needs for the future and ensure sufficient funding and flexibility?

SCHEDULE AND TIMELINE

February 26, 2015- Introductory Meeting

March – July 2015- Panel meets on each of the topics and develops recommendations around each area.

July 2015- Panel issues draft recommendations

July- September 2015– Stakeholders (individuals, family members, advocates, providers, etc.) provide input and feedback on the panel’s preliminary recommendations

October 2015– Panel issues final recommendations and summary of public input

Ongoing- PPWDD provides regular updates regarding the implementation of recommendations

Parent Panel on Advocacy (ages 0-21)

Advocacy, Bronx, Brooklyn, Manhattan, Queens, Staten Island, Uncategorized

Parent Panel on Advocacy for Children from Birth to 21 Diagnosed with Special Needs 

DEVELOPMENTAL DISABILITIES (DD) INCLUDE (BUT ARE NOT LIMITED TO) INTELLECTUAL DISABILITIES (ID), AUTISM, CEREBRAL PALSY, EPILEPSY, AND OTHER NEUROLOGICAL IMPAIRMENTS.

Parent led conversation on how to get your child the educational, recreational, “Life” supports and services they need.

Paola Jordan: Parent, Autism Initiative Coordinator, Sinergia 

Lori Podvesker: Parent, Program Manager, Policy Analysis & Systemic Advocacy, Resources for Children with Special Needs

Learn From Parents Who Have Gotten What Their Family Needs

Tuesday, June 2nd, 2015
10am to Noon
at Sinergia
2082 Lexington Avenue, 4th floor

Spanish Translation & Light Breakfast

PDF FLYER :Parent Panel Advocacy June 2 2015

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Meet the People Advising OPWDD

Advocacy, Bronx, Brooklyn, Manhattan, Queens, Resources, Staten Island, , ,

Meet The Panel

PANEL VERSION 2.pages corrected

OPWDD has created a Transformation Panel
to suggest ways of implementing the Transformation Agreement

The following Members of the Panel have agreed to come and hear from family members their concerns with the Agenda:
Peter Pierri, Susan Constantino,  Arthur Webb, Stephen Freeman, Charles Archer, Seth Stein (tentative)  

Click here for an explanation from the Kick-Off meeting hosted by OPWDD

Meeting hosted by OPWDD
Tuesday, May 19th, 2015
6 to 8pm,
Inter-Agency Council
130 West 30th Street – 15th Floor
(Just east of 7th Ave.)

Spanish Translation Available
Lite Supper

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