All posts by elly.rufer@gmail.com

Rally: Tony Consentino’s Quest

Events, Uncategorized

At our recent meeting with Evan Sullivan, Senator Carlucci’s representative, we promised to share the details of any topics that were brought to our attention.

Tony Consentino, father and advocate, passionately described his objection to the closure of his son’s home for the last 30+ years at the Bernard Fineson Developmental Center. He is looking for other families who oppose the closure of developmental centers, who demand accountability and look to improve services. Tony, the CSEA (the union for staff in state-operated OPWDD facilities) and others who object to the closure of Developmental Centers across New York will rally in front of Governor Cuomo’s mid-town office, 633 3rd Ave. at 41st on Tuesday, November 17th at 11:30 AM.

Parent Action Conference at PS 133 in Brooklyn

Advocacy, Events, Resources

FROM: PARENT-TO-PARENT NYC:

Great source of lots of information

 On Saturday, November 7th, we are co-sponsoring a Parent Action Conference at PS 133 in Brooklyn, (near the Barclay Center and many subway stops). We will have workshops on developing action plans to address school overcrowding, rising class sizes, special education, mayoral control, empowering parents and school leadership teams, opting out of testing, protecting student privacy, and many other critical issues. Free lunch and child care are included. Please register at Eventbrite today to reserve your ticket or click here: http://bit.ly/1KIC487.

See FLYER :Parent-Action-Agenda-Revised-6

NYS Senator David Carlucci: Meeting Information & Registration

Action Alerts, Advocacy, Bronx, Brooklyn, Events, Manhattan, nyc fair, opwdd, Queens, Resources, Staten Island, Surveys, , , , ,

LINKED HERE ARE THE HANDOUTS FROM OCTOBER 27TH MEETING

A RECAP & A TRANSCRIPT OF THE MEETING WILL BE POSTED ASAP

Resource Events for Oct 27 mtg NYC FAIR MISSION

NYC FAIR MISSION

SummaryofConcernsFinal

 

 

 

NYC FAIR Was A Presence @ Assembly Hearing on October 20th

Advocacy, Events, opwdd, Testimony, , , , ,

Re-cap by Barbara V. Crosier, Cerebral Palsy Assoc. of NYS of NYS Assembly Hearings on October 20th, 2015

WE WILL POST ADD”L COVERAGE AS AVAILABLE

READ TESTIMONY GIVEN

“The Assembly Mental Health and Developmental Disabilities Committee’s hearing to identify barriers to the successful implementation of the OPWDD Transformation Agreement  was held on Tuesday, October 20, 2015,  in Albany.

Assembly Mental Health and Developmental Disabilities Committee Chair, Aileen Gunther was joined at various points by Assemblymembers John McDonald, Donna Lupardo, Tom Abinanti and Didi Barrett. The hearing went to 5 pm with 29 individuals presenting testimony.  Attached is the list (http://assembly.state.ny.us/av/hearings/) of those who presented testimony with Helene DeSanto presenting for OPWDD and the nine panels primarily comprised of parents.”

…………………..
“Assemblymember Gunther said that she clearly heard how critical it was for additional funding be added for residential and day supports, direct support professional wages and that managed care had not been implemented successfully for individuals with I/DD in any state.  The hearing provided a wonderful opportunity for families and advocates to voice the growing concerns of the developmental disabilities field.”

The hearing can be seen at: http://assembly.state.ny.us/av/hearings/

View articles from Ploitico Story on Hearing

featuring quotes from Elly Rufer, NYC FAIR Executive
and AP story on Hearing (Syracuse.com)
 
 

RESIDENTIAL REQUEST LIST: MORE TIME…

Action Alerts, Advocacy, Surveys

RE: RESIDENTIAL REQUEST LIST: MORE TIME…

This Just IN:
We have received the email below from OPWDD and have been asked to distribute it widely to families and staff :

If you have already completed the Residential Request List survey, we thank you very much!

 If you have not yet completed the survey and still want to, please call 1-844-679-3369 on:

  • October 16 (Friday) from 5pm – 7:45pm
    October 17 (Saturday) from 9am – 5pm
    October 26 – October 30 (Monday – Friday) from 5pm – 7:45pm OR
    October 31 (Saturday) from 9am – 5pm.


PLEASE NOTE: The telephone survey is not available from Sunday, October 18 to Sunday, October 25.
The telephone survey will end on Saturday, October 31, 2015 at 5 pm, so you will not be able to complete a survey after 5pm on Saturday, October 31, 2015.
You do not have to be on the Residential Request List to do a survey. For more information, please go to http://www.opwdd.ny.gov/opwdd_abo…/commissioners_page/…/home.

NOTE: OPWDD WEBSITE STILL HAS OLD DATE.